Catalonia's care model for rare diseases

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RECERCAT Home > Sistema de Salut de Catalunya > Servei Català de la Salut – CatSalut > Presentacions a jornades i congressos - CatSalut > View document

To access the full text documents, please follow this link: http://hdl.handle.net/11351/6827

dc.contributor	Servei Català de la Salut (CatSalut), Generalitat de Catalunya, Barcelona, Spain
dc.contributor	Departament de Salut
dc.contributor.author	Mallol, Cristina
dc.contributor.author	Reig, R.
dc.contributor.author	Francisco-Bordas, Roser
dc.contributor.author	Magrinyà-Rull, Pilar
dc.contributor.author	Torrent-Farnell, Josep
dc.contributor.author	Jiménez-Villa, Josep
dc.contributor.author	Franch, Ll.
dc.contributor.author	Guarga-Rojas, Alejandro
dc.contributor.author	Altabella, D.
dc.contributor.author	Rivera, J.
dc.contributor.author	Ricart-Conesa, Assumpta
dc.contributor.author	Acebes, X.
dc.date	2022-01-18T14:24:25Z
dc.date	2022-01-18T14:24:25Z
dc.date	2021-11
dc.identifier	Mallol C, Reig R, Francisco R, Magrinyà P, Torrent J, Jimenez J, et al. Catalonia's care model for rare diseases. Poster presented at: 44th IHF World Hospital Congress; 2021 November 8-11; Barcelona.
dc.identifier	http://hdl.handle.net/11351/6827
dc.identifier.uri	http://hdl.handle.net/11351/6827
dc.format	image/jpeg
dc.language	eng
dc.publisher	Servei Català de la Salut
dc.relation	The 44th IHF World Hospital Congress
dc.relation	2021-11-08
dc.relation	Barcelona
dc.rights	Attribution-NonCommercial-NoDerivatives 4.0 International
dc.rights	http://creativecommons.org/licenses/by-nc-nd/4.0/
dc.rights	info:eu-repo/semantics/openAccess
dc.source	Scientia
dc.subject	Malalties rares
dc.subject	Serveis sanitaris - Catalunya
dc.subject	DISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Rare Diseases
dc.subject	HEALTH CARE::Health Care Facilities, Manpower, and Services::Health Services
dc.subject	Catalonia
dc.subject	ENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::atributos de la enfermedad::enfermedades raras
dc.subject	ATENCIÓN DE SALUD::instalaciones, servicios y personal de asistencia sanitaria::servicios de salud
dc.subject	Cataluña
dc.title	Catalonia's care model for rare diseases
dc.type	info:eu-repo/semantics/conferenceObject
dc.type	info:eu-repo/semantics/publishedVersion
dc.description.abstract	Malalties rares; Xarxes d'unitats d'expertesa clínica; XUEC; Equips multidisciplinaris
dc.description.abstract	Enfermedades raras; Redes de unidades de experiencia clínica; XUEC; Equipos multidisciplinarios
dc.description.abstract	Rare diseases; Networks of clinical expertise units; XUEC; Multidisciplinary teams
dc.description.abstract	El Comitè Europeu de Salut defineix les malalties rares (MR) com "malalties cròniques debilitants que amenacen la vida i que tenen una prevalença tan baixa que calen esforços especials combinats per abordar-les". Constitueixen entitats clíniques molt heterogènies, multisistèmiques i cròniques que requereixen un enfocament multidisciplinari. Les MR es defineixen amb una prevalença inferior a 1 de cada 2000 persones a Europa.

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