dc.contributor
Servei Català de la Salut (CatSalut), Generalitat de Catalunya, Barcelona, Spain
dc.contributor
Departament de Salut
dc.contributor.author
Reig, R.
dc.contributor.author
Francisco-Bordas, Roser
dc.contributor.author
Magrinyà-Rull, Pilar
dc.contributor.author
Torrent-Farnell, Josep
dc.contributor.author
Jiménez-Villa, Josep
dc.contributor.author
Franch, Ll.
dc.contributor.author
Guarga-Rojas, Alejandro
dc.contributor.author
Altabella, D.
dc.contributor.author
Rivera, J.
dc.contributor.author
Ricart-Conesa, Assumpta
dc.contributor.author
Acebes, Xenia
dc.contributor.author
Mallol, Cristina
dc.date.accessioned
2025-10-24T10:15:25Z
dc.date.available
2025-10-24T10:15:25Z
dc.date.issued
2022-01-18T14:24:25Z
dc.date.issued
2022-01-18T14:24:25Z
dc.identifier
Mallol C, Reig R, Francisco R, Magrinyà P, Torrent J, Jimenez J, et al. Catalonia's care model for rare diseases. Poster presented at: 44th IHF World Hospital Congress; 2021 November 8-11; Barcelona.
dc.identifier
https://hdl.handle.net/11351/6827
dc.identifier.uri
http://hdl.handle.net/11351/6827
dc.description.abstract
Malalties rares; Xarxes d'unitats d'expertesa clínica; XUEC; Equips multidisciplinaris
dc.description.abstract
Enfermedades raras; Redes de unidades de experiencia clínica; XUEC; Equipos multidisciplinarios
dc.description.abstract
Rare diseases; Networks of clinical expertise units; XUEC; Multidisciplinary teams
dc.description.abstract
El Comitè Europeu de Salut defineix les malalties rares (MR) com "malalties cròniques debilitants que amenacen la vida i que tenen una prevalença tan baixa que calen esforços especials combinats per abordar-les". Constitueixen entitats clíniques molt heterogènies, multisistèmiques i cròniques que requereixen un enfocament multidisciplinari. Les MR es defineixen amb una prevalença inferior a 1 de cada 2000 persones a Europa.
dc.publisher
Servei Català de la Salut
dc.relation
The 44th IHF World Hospital Congress
dc.rights
Attribution-NonCommercial-NoDerivatives 4.0 International
dc.rights
http://creativecommons.org/licenses/by-nc-nd/4.0/
dc.rights
info:eu-repo/semantics/openAccess
dc.subject
Malalties rares
dc.subject
Serveis sanitaris - Catalunya
dc.subject
DISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Rare Diseases
dc.subject
HEALTH CARE::Health Care Facilities, Manpower, and Services::Health Services
dc.subject
ENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::atributos de la enfermedad::enfermedades raras
dc.subject
ATENCIÓN DE SALUD::instalaciones, servicios y personal de asistencia sanitaria::servicios de salud
dc.title
Catalonia's care model for rare diseases
dc.type
info:eu-repo/semantics/conferenceObject
dc.type
info:eu-repo/semantics/publishedVersion
