Catalonia's care model for rare diseases

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RECERCAT Home > Sistema de Salut de Catalunya > Servei Català de la Salut – CatSalut > Presentacions a jornades i congressos - CatSalut > View document

To access the full text documents, please follow this link: http://hdl.handle.net/11351/6827

Title:	Catalonia's care model for rare diseases
Author:	Mallol, Cristina; Reig, R.; Francisco-Bordas, Roser; Magrinyà-Rull, Pilar; Torrent-Farnell, Josep; Jiménez-Villa, Josep; Franch, Ll.; Guarga-Rojas, Alejandro; Altabella, D.; Rivera, J.; Ricart-Conesa, Assumpta; Acebes, X.
Other authors:	Servei Català de la Salut (CatSalut), Generalitat de Catalunya, Barcelona, Spain; Departament de Salut
Abstract:	Malalties rares; Xarxes d'unitats d'expertesa clínica; XUEC; Equips multidisciplinaris
Abstract:	Enfermedades raras; Redes de unidades de experiencia clínica; XUEC; Equipos multidisciplinarios
Abstract:	Rare diseases; Networks of clinical expertise units; XUEC; Multidisciplinary teams
Abstract:	El Comitè Europeu de Salut defineix les malalties rares (MR) com "malalties cròniques debilitants que amenacen la vida i que tenen una prevalença tan baixa que calen esforços especials combinats per abordar-les". Constitueixen entitats clíniques molt heterogènies, multisistèmiques i cròniques que requereixen un enfocament multidisciplinari. Les MR es defineixen amb una prevalença inferior a 1 de cada 2000 persones a Europa.
Subject(s):	-Malalties rares -Serveis sanitaris - Catalunya -DISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Rare Diseases -HEALTH CARE::Health Care Facilities, Manpower, and Services::Health Services -Catalonia -ENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::atributos de la enfermedad::enfermedades raras -ATENCIÓN DE SALUD::instalaciones, servicios y personal de asistencia sanitaria::servicios de salud -Cataluña
Rights:	Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/
Document type:	Conference Object Article - Published version
Published by:	Servei Català de la Salut
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