dc.contributor
[Gonzalez-Del-Rio M] Neurodegeneration and Neuroinflammation Research Group, Biomedical Research Institute (IDIBGI), Girona, Spain. Neurology Department, Girona Neuroimmunology and Multiple Sclerosis Unit, Salt, Spain. [Bertran-Noguer C] Nursing Department, Faculty of Nursing, Universitat de Girona, Girona, Spain. [Ramió-Torrentà LL] Neurodegeneration and Neuroinflammation Research Group, Biomedical Research Institute (IDIBGI), Girona, Spain. Neurology Department, Girona Neuroimmunology and Multiple Sclerosis Unit, Salt, Spain. Medical Sciences Department, Universitat de Girona, Girona, Spain. [Zabaleta-Del-Olmo E] Nursing Department, Faculty of Nursing, Universitat de Girona, Girona, Spain. Fundació Institut Universitari per a la recerca a l'Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol), Barcelona, Spain. Gerència Territorial de Barcelona, Institut Català de la Salut (ICS), Barcelona, Spain
dc.contributor
IDIAP Jordi Gol
dc.contributor.author
González del Rio, Marina
dc.contributor.author
Bertran Noguer, Carme
dc.contributor.author
Zabaleta-del-Olmo, Edurne
dc.contributor.author
Ramió-Torrentà, Lluís
dc.date.accessioned
2025-10-24T10:58:21Z
dc.date.available
2025-10-24T10:58:21Z
dc.date.issued
2021-10-18T07:49:19Z
dc.date.issued
2021-10-18T07:49:19Z
dc.date.issued
2021-10-05
dc.identifier
Gonzalez-del-Rio M, Bertran-Noguer C, Ramió-Torrentà L, Zabaleta-del-Olmo E. Disease-related knowledge measurement instruments of people affected by multiple sclerosis: protocol for a systematic psychometric review BMJ Open. 2021 Oct 5;11(10):e049580.
dc.identifier
https://hdl.handle.net/11351/6402
dc.identifier
10.1136/bmjopen-2021-049580
dc.identifier.uri
https://hdl.handle.net/11351/6402
dc.description.abstract
Adult neurology; Multiple sclerosis; Quality in health care
dc.description.abstract
Neurología de adultos; Esclerosis múltiple; Calidad en el cuidado de la salud
dc.description.abstract
Neurologia de l’adult; Esclerosi múltiple; Qualitat en l'atenció sanitària
dc.description.abstract
Introduction: Disease-related knowledge is a key component of shared decision making and a relevant outcome to measure the effectiveness of information provision interventions. However, no systematic psychometric reviews have been found that assess the measurement instruments aimed at evaluating the disease-related knowledge of people affected by multiple sclerosis. This review aims to systematically assess the quality of the measurement properties of all available disease-related knowledge measurement instruments of people affected by multiple sclerosis.
Methods and analysis: A systematic psychometric review will be carried out in accordance with the guidelines proposed by the international 'COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN)' initiative. Studies that meet the following criteria will be selected: (1) those whose aim is to measure disease-related knowledge, (2) those whose study populations are affected by multiple sclerosis and (3) those whose aims are to develop measurement instruments or evaluate one or more of their measurement properties. The information sources will be MEDLINE (via PubMed), CINAHL, PsycINFO and OpenGrey. The methodological quality will be assessed using the 'COSMIN Risk of Bias' checklist. Available evidence will be synthesised and graded using a modified Grading of Recommendations Assessment, Development and Evaluation approach.
Ethics and dissemination: As this is a systematic review, no ethics approval is needed. Study findings will be shared with multiple sclerosis patient support groups and in reports to funders. The results will be submitted to a peer-reviewed journal and will be presented at national and international conferences.
dc.format
application/pdf
dc.relation
https://bmjopen.bmj.com/content/11/10/e049580.full
dc.rights
Attribution-NonCommercial-NoDerivatives 4.0 International
dc.rights
http://creativecommons.org/licenses/by-nc-nd/4.0/
dc.rights
info:eu-repo/semantics/openAccess
dc.subject
Esclerosi múltiple
dc.subject
Assistència sanitària - Qualitat
dc.subject
DISEASES::Nervous System Diseases::Autoimmune Diseases of the Nervous System::Demyelinating Autoimmune Diseases, CNS::Multiple Sclerosis
dc.subject
HEALTH SURVEILLANCE::Health Surveillance of Health Services::Delivery of Health Care::Quality of Health Care
dc.subject
ENFERMEDADES::enfermedades del sistema nervioso::enfermedades autoinmunitarias del sistema nervioso::enfermedades autoinmunes desmielinizantes del SNC::esclerosis múltiple
dc.subject
VIGILANCIA SANITARIA::vigilancia sanitaria de los servicios de salud::prestación sanitaria::calidad de la atención sanitaria
dc.title
Disease-related knowledge measurement instruments of people affected by multiple sclerosis: protocol for a systematic psychometric review
dc.type
info:eu-repo/semantics/article
dc.type
info:eu-repo/semantics/publishedVersion
