Sistema de Salut de Catalunya
[Gonzalez-Del-Rio M] Neurodegeneration and Neuroinflammation Research Group, Biomedical Research Institute (IDIBGI), Girona, Spain. Neurology Department, Girona Neuroimmunology and Multiple Sclerosis Unit, Salt, Spain. [Bertran-Noguer C] Nursing Department, Faculty of Nursing, Universitat de Girona, Girona, Spain. [Ramió-Torrentà LL] Neurodegeneration and Neuroinflammation Research Group, Biomedical Research Institute (IDIBGI), Girona, Spain. Neurology Department, Girona Neuroimmunology and Multiple Sclerosis Unit, Salt, Spain. Medical Sciences Department, Universitat de Girona, Girona, Spain. [Zabaleta-Del-Olmo E] Nursing Department, Faculty of Nursing, Universitat de Girona, Girona, Spain. Fundació Institut Universitari per a la recerca a l'Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol), Barcelona, Spain. Gerència Territorial de Barcelona, Institut Català de la Salut (ICS), Barcelona, Spain
IDIAP Jordi Gol
2021-10-18T07:49:19Z
2021-10-18T07:49:19Z
2021-10-05
Adult neurology; Multiple sclerosis; Quality in health care
Neurología de adultos; Esclerosis múltiple; Calidad en el cuidado de la salud
Neurologia de l’adult; Esclerosi múltiple; Qualitat en l'atenció sanitària
Introduction: Disease-related knowledge is a key component of shared decision making and a relevant outcome to measure the effectiveness of information provision interventions. However, no systematic psychometric reviews have been found that assess the measurement instruments aimed at evaluating the disease-related knowledge of people affected by multiple sclerosis. This review aims to systematically assess the quality of the measurement properties of all available disease-related knowledge measurement instruments of people affected by multiple sclerosis. Methods and analysis: A systematic psychometric review will be carried out in accordance with the guidelines proposed by the international 'COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN)' initiative. Studies that meet the following criteria will be selected: (1) those whose aim is to measure disease-related knowledge, (2) those whose study populations are affected by multiple sclerosis and (3) those whose aims are to develop measurement instruments or evaluate one or more of their measurement properties. The information sources will be MEDLINE (via PubMed), CINAHL, PsycINFO and OpenGrey. The methodological quality will be assessed using the 'COSMIN Risk of Bias' checklist. Available evidence will be synthesised and graded using a modified Grading of Recommendations Assessment, Development and Evaluation approach. Ethics and dissemination: As this is a systematic review, no ethics approval is needed. Study findings will be shared with multiple sclerosis patient support groups and in reports to funders. The results will be submitted to a peer-reviewed journal and will be presented at national and international conferences.
Article
Published version
English
Esclerosi múltiple; Assistència sanitària - Qualitat; DISEASES::Nervous System Diseases::Autoimmune Diseases of the Nervous System::Demyelinating Autoimmune Diseases, CNS::Multiple Sclerosis; HEALTH SURVEILLANCE::Health Surveillance of Health Services::Delivery of Health Care::Quality of Health Care; ENFERMEDADES::enfermedades del sistema nervioso::enfermedades autoinmunitarias del sistema nervioso::enfermedades autoinmunes desmielinizantes del SNC::esclerosis múltiple; VIGILANCIA SANITARIA::vigilancia sanitaria de los servicios de salud::prestación sanitaria::calidad de la atención sanitaria
BMJ
https://bmjopen.bmj.com/content/11/10/e049580.full
Attribution-NonCommercial-NoDerivatives 4.0 International
http://creativecommons.org/licenses/by-nc-nd/4.0/
