Sistema de Salut de Catalunya
Institut Català de la Salut
[Orozco-Beltrán D] Clinical Medicine Department, Miguel Hernandez University, San Juan de Alicante, Spain. [de Toro J] Rheumatology Department, A Coruña University Hospital, A Coruña, Spain. [Galindo MJ] Clinic University Hospital, Valencia, Spain. [Marín-Jiménez I] IBD Unit, Gastroenterology Department, Clinical Research Institute Gregorio Marañón (IiSGM), Gregorio Marañón University, Madrid, Spain. [Casellas F] Unitat d’Atenció Crohn-Colitis, Vall d’Hebron Hospital Universitari, Barcelona, Spain
Vall d'Hebron Barcelona Hospital Campus
2021-04-19T13:48:46Z
2021-04-19T13:48:46Z
2018
2019-06-01
Health Administration; Public Health; Quality of Life Research
Administración sanitaria; Salud pública; Investigación de calidad de vida
Administració sanitària; Salut pública; Investigació sobre la qualitat de vida
Background Patient experience is acknowledged as a principal aspect of quality healthcare delivery, and it has implications with regard to outcomes. Objectives Our objective was to evaluate the healthcare experience of patients with chronic diseases to identify patient-perceived healthcare gaps and to assess the influence of demographic and healthcare-related variables on patient experiences. Methods A cross-sectional survey was delivered to adult patients with chronic diseases: diabetes mellitus (DM), human immunodeficiency virus (HIV) infection, inflammatory bowel disease (IBD) or rheumatic diseases. Patient experiences were assessed with the Instrument for Evaluation of the Experience of Chronic Patients (IEXPAC) questionnaire, with possible scores ranging from 0 (worst) to 10 (best experience). Results Of the 2474 patients handed the survey, 1618 returned it (response rate 65.4%). Patients identified gaps in healthcare related mainly to access to reliable information and services, interaction with other patients and continuity of healthcare after hospital discharge. The mean ± standard deviation (SD) IEXPAC score was 6.0 ± 1.9 and was higher for patients with HIV (6.6 ± 1.7) than for those with rheumatic disease (5.5 ± 2.0), IBD (5.9 ± 2.0) or DM (5.9 ± 1.9) (p < 0.001). In multivariate models, better overall IEXPAC experience was associated with follow-up by the same physician, follow-up by a nurse, receiving healthcare support from others and treatment with subcutaneous or intravenous drugs. The multivariate model that confirmed patients with HIV or DM had better experience than did those with rheumatic diseases. Conclusions Through IEXPAC, patients identified aspects for healthcare quality improvements and circumstances associated with better experience, which may permit greater redirection of healthcare toward patient-centered goals while facilitating improvements in social care and long-term healthcare quality.
This project was funded by Merck Sharp and Dohme, Spain.
Article
Published version
English
Adults; Malalties cròniques; Pacients - Satisfacció; NAMED GROUPS::Persons::Age Groups::Adult; DISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Chronic Disease; HEALTH CARE::Health Care Quality, Access, and Evaluation::Health Care Quality, Access, and Evaluation::Quality of Health Care::Health Care Evaluation Mechanisms::Patient Satisfaction; DENOMINACIONES DE GRUPOS::personas::Grupos de Edad::adulto; ENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::atributos de la enfermedad::enfermedad crónica; ATENCIÓN DE SALUD::calidad, acceso y evaluación de la atención sanitaria::calidad, acceso y evaluación de la atención sanitaria::calidad de la atención sanitaria::mecanismos de evaluación de la atención sanitaria::satisfacción del paciente
Adis
The Patient - Patient-Centered Outcomes Research;12(3)
https://link.springer.com/article/10.1007%2Fs40271-018-0345-1
Attribution-NonCommercial 4.0 International
http://creativecommons.org/licenses/by-nc/4.0/
Articles científics - HVH [3440]
