dc.contributor
Institut Català de la Salut
dc.contributor
[Carmona Segovia ADM, Becerra-Muñoz VM] CIBERCV, Centro de Investigación Biomédica en Red de Enfermedades Cardiovasculares, Instituto de Salud Carlos III, Spain. University of Malaga, Málaga, Spain. Instituto de Investigación Biomédica de Málaga y Plataforma en Nanomedicina (IBIMA-Plataforma BIONAND), Malaga, Spain. Unidad de Gestión Clínica Área del Corazón, Hospital Universitario Virgen de la Victoria, Málaga, Spain. [Jiménez Arjona MJ, Naranjo Velasco V] Servicio de Medicina Interna, Hospital Jerez de la Frontera, Ronda de Circunvalación, Cádiz, Spain. [Ochoa N] CIBERCV, Centro de Investigación Biomédica en Red de Enfermedades Cardiovasculares, Instituto de Salud Carlos III, Spain. Unidad Multidisciplinar de Hipertensión Pulmonar, Servicio de Cardiología, Hospital Universitario 12 de Octubre, Madrid, Spain. [Barberà JA, Blanco I] Department of Pulmonary Medicine, Pulmonary Hypertension Unit, Hospital Clínic, University of Barcelona, Barcelona, Spain. Servei de Pneumologia, Vall d’Hebron Hospital Universitari, Barcelona, Spain. Centro de Investigación Biomédica en Red de Enfermedades Respiratorias (CIBERES), Instituto de Salud Carlos III, Spain. [López-Meseguer M] Servei de Pneumologia, Vall d’Hebron Hospital Universitari, Barcelona, Spain. Centro de Investigación Biomédica en Red de Enfermedades Respiratorias (CIBERES), Instituto de Salud Carlos III, Spain
dc.contributor
Vall d'Hebron Barcelona Hospital Campus
dc.contributor.author
Carmona, Ada del Mar
dc.contributor.author
Jiménez Arjona, María Josefa
dc.contributor.author
Naranjo Velasco, Virginia
dc.contributor.author
Ochoa, Nuria
dc.contributor.author
Blanco, Isabel
dc.contributor.author
Becerra Muñoz, Víctor Manuel
dc.contributor.author
Barberà, Joan Albert
dc.contributor.author
López Meseguer, Manuel
dc.date.accessioned
2025-11-08T13:38:01Z
dc.date.available
2025-11-08T13:38:01Z
dc.date.issued
2025-11-06T11:33:44Z
dc.date.issued
2025-11-06T11:33:44Z
dc.identifier
Carmona Segovia ADM, Becerra-Muñoz VM, Jiménez Arjona MJ, Naranjo Velasco V, Ochoa N, Barberà JA, et al. Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain. A cross-sectional study. Eur J Cardiovasc Nurs. 2025 Nov;24(7):zvaf108.
dc.identifier
http://hdl.handle.net/11351/14032
dc.identifier
10.1093/eurjcn/zvaf108
dc.identifier
001574599700001
dc.identifier.uri
http://hdl.handle.net/11351/14032
dc.description.abstract
Pulmonary arterial hypertension; Quality of life
dc.description.abstract
Hipertensió arterial pulmonar; Qualitat de vida
dc.description.abstract
Hipertensión arterial pulmonar; Calidad de vida
dc.description.abstract
This study aimed to determine how often health-related quality of life (HRQoL) is assessed in patients with pulmonary arterial hypertension (PAH) and to elucidate which tools are most frequently used in a real-life setting. We conducted a multicentric retrospective cross-sectional analysis of 3628 PAH patients enrolled in the Spanish Registry of Pulmonary Arterial Hypertension (REHAP) from 2007 to 2023. HRQoL questionnaires were used in only 67 patients (1.8%). Among them, generic tools were the most used (SF-36 in 16.9% and EQ5D in 10.2%). These findings highlight a marked underutilization of HRQoL assessment tools in PAH patients included in REHAP.
dc.description.abstract
The report did not receive any specific financial support. No funder or sponsor was involved in its preparation. Ada del Mar Carmona Segovia was supported by the ‘PFIS’ program (FI23/00016) from the Instituto de Salud Carlos III (ISCIII), co-funded by the European Union.
dc.format
application/pdf
dc.publisher
Oxford University Press
dc.relation
European Journal of Cardiovascular Nursing;24(7)
dc.relation
https://doi.org/10.1093/eurjcn/zvaf108
dc.rights
Attribution-NonCommercial 4.0 International
dc.rights
http://creativecommons.org/licenses/by-nc/4.0/
dc.rights
info:eu-repo/semantics/openAccess
dc.subject
Pacients - Satisfacció
dc.subject
Hipertensió pulmonar
dc.subject
Artèria pulmonar
dc.subject
ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Investigative Techniques::Epidemiologic Methods::Data Collection::Surveys and Questionnaires
dc.subject
HEALTH CARE::Environment and Public Health::Public Health::Epidemiologic Measurements::Demography::Health Status::Quality of Life
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DISEASES::Respiratory Tract Diseases::Lung Diseases::Hypertension, Pulmonary
dc.subject
ANATOMY::Cardiovascular System::Blood Vessels::Arteries::Pulmonary Artery
dc.subject
TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::técnicas de investigación::métodos epidemiológicos::recopilación de datos::encuestas y cuestionarios
dc.subject
ATENCIÓN DE SALUD::ambiente y salud pública::salud pública::medidas epidemiológicas::demografía::estado de salud::calidad de vida
dc.subject
ENFERMEDADES::enfermedades respiratorias::enfermedades pulmonares::hipertensión pulmonar
dc.subject
ANATOMÍA::sistema cardiovascular::vasos sanguíneos::arterias::arteria pulmonar
dc.title
Real-life use of validated quality of life questionnaires in patients with pulmonary arterial hypertension in Spain: a cross-sectional study
dc.type
info:eu-repo/semantics/article
dc.type
info:eu-repo/semantics/publishedVersion
