dc.contributor
Institut Català de la Salut
dc.contributor
[García-Barcenilla S, Castro Blanco A] Congenital and Acquired Coagulopathies Unit, Hospital La Paz Institute for Health Research – IdiPAZ (La Paz University Hospital – Universidad Autónoma de Madrid), Madrid, Spain. [Rambla Pérez M] Hematology Department, Thrombosis & Hemostasis Unit, Sant Pau Campus Salut Barcelona (HSP), Hospital de la Santa Creu i Sant Pau, Unitat Integrada Hemofília SJD-HSP, CSUR Coagulopatías, XUEC Coagulopathies, Barcelona, Spain. [Pérez N] Blood Bank and Apheresis Unit, Río Hortega University Hospital, Valladolid, Spain. [Diaz A] Hemostasis Unit, Doctor Josep Trueta University Hospital, Girona, Spain. [Fernandez Sarmiento C, Álvarez Martínez E] Unitat d’Hemofília, Servei d’Hematologia, Vall d’Hebron Hospital Universitari, Barcelona, Spain
dc.contributor
Vall d'Hebron Barcelona Hospital Campus
dc.contributor.author
Rambla Pérez, Montserrat
dc.contributor.author
Pérez, Noelia
dc.contributor.author
Castro Blanco, Alfonso
dc.contributor.author
Diaz, Anna
dc.contributor.author
Fernandez Sarmiento, Carmen
dc.contributor.author
Álvarez Martínez, Eva
dc.contributor.author
García-Barcenilla, Sara
dc.date.accessioned
2025-10-31T04:47:15Z
dc.date.available
2025-10-31T04:47:15Z
dc.date.issued
2025-10-30T13:32:28Z
dc.date.issued
2025-10-30T13:32:28Z
dc.identifier
García-Barcenilla S, Rambla Pérez M, Pérez N, Castro Blanco A, Diaz A, Fernandez Sarmiento C, et al. Identifying Professional Responsibilities and Designing the Optimal Curriculum for Haemophilia Nurses in Spain: A Round Table Discussion. Haemophilia. 2025 Sep;31(5):981–7.
dc.identifier
http://hdl.handle.net/11351/13988
dc.identifier
10.1111/hae.70105
dc.identifier
001546192100001
dc.identifier.uri
http://hdl.handle.net/11351/13988
dc.description.abstract
Curriculum; Educational; Haemophilia
dc.description.abstract
Currículum; Educatiu; Hemofília
dc.description.abstract
Currículum; Educativo; Hemofilia
dc.description.abstract
Introduction: There is a lack of consensus on professional competencies or educational requirements needed for registered nurses working with haemophilia patients (namely, haemophilia nurses) in thrombosis and haemostasis units in Spain. Their role is not officially recognised in many healthcare systems (HCS), including Spain.
Aim: To identify and define the optimal curriculum and professional responsibilities of haemophilia nurses in Spain.
Methods: A total of 205 items were developed through literature review, and the input was presented and rated using a 10-point Likert scale to reach posterior consensus. Items were grouped into three blocks: optimal curriculum, responsibilities in therapeutic management and follow-up, and roles in patient and family education. Consensus was defined as a mean score between 6.6 and 10. A virtual round table with final statements was held on 19 March 2024 with the participation of 13 haemophilia nurses.
Results: Agreement was reached on all items. A three-level framework (basic, advanced, expert) was proposed as a tool for knowledge of pathophysiology, laboratory procedures and therapeutic strategies. Nurses also pointed to an active role in treatment management, clinical assessment and education. Other ideal responsibilities included participation in research, education of colleagues, patients and families, and advocacy within the HCS.
Conclusion: This consensus-based proposal aimed to provide a structured, standardised framework for the education, scope, and recognition of congenital coagulopathies nurses in Spain. This framework of competencies could be the stepping stone to formal training programmes, accreditation systems, and the advancement of professional development in specialised nursing care for rare bleeding disorders.
dc.description.abstract
This study was funded by Roche Farma (Spain).
dc.format
application/pdf
dc.relation
Haemophilia;31(5)
dc.relation
https://doi.org/10.1111/hae.70105
dc.rights
Attribution-NonCommercial 4.0 International
dc.rights
http://creativecommons.org/licenses/by-nc/4.0/
dc.rights
info:eu-repo/semantics/openAccess
dc.subject
Curriculum vitae
dc.subject
NAMED GROUPS::Persons::Occupational Groups::Health Personnel::Nurses
dc.subject
DISEASES::Hemic and Lymphatic Diseases::Hematologic Diseases::Blood Coagulation Disorders::Blood Coagulation Disorders, Inherited::Hemophilia A
dc.subject
ANTHROPOLOGY, EDUCATION, SOCIOLOGY, AND SOCIAL PHENOMENA::Education::Curriculum
dc.subject
DENOMINACIONES DE GRUPOS::personas::grupos profesionales::personal sanitario::enfermeros
dc.subject
ENFERMEDADES::enfermedades hematológicas y linfáticas::enfermedades hematológicas::trastornos de la coagulación sanguínea::trastornos de la coagulación sanguínea hereditarios::hemofilia A
dc.subject
ANTROPOLOGÍA, EDUCACIÓN, SOCIOLOGÍA Y FENÓMENOS SOCIALES::educación::programa de estudios
dc.title
Identifying Professional Responsibilities and Designing the Optimal Curriculum for Haemophilia Nurses in Spain: A Round Table Discussion
dc.type
info:eu-repo/semantics/article
dc.type
info:eu-repo/semantics/publishedVersion
