Sistema de Salut de Catalunya
Institut Català de la Salut
[Hamilton K, Forde R, Due-Christensen M] Kings College London, Florence Nightingale Faculty of Nursing, Midwifery and Palliative Care, London, UK. [Eeg-Olofson K] University of Gothenburg, Institute of Medicine, Department of Molecular and Clinical Medicine, Gothenburg, Sweden. [Nathanson D] Karolinska Institutet, Department of Medicine, Huddinge, Sweden. Karolinska University Hospital, Medical Unit Endocrinology, Huddinge, Sweden. [Rossner S] Karolinska Institutet, Department of Medicine, Huddinge, Sweden. [Flores V] Vall d’Hebron Hospital Universitari, Barcelona, Spain. Vall d’Hebron Institut de Recerca (VHIR), Barcelona, Spain
Vall d'Hebron Barcelona Hospital Campus
2023-09-19T08:55:42Z
2023-09-19T08:55:42Z
2023-11
Diabetes mellitus; Patient reported outcome measures; Type 1
Diabetis mellitus; Mesures de resultat informades pel pacient; Tipus 1
Diabetes mellitus; Medidas de resultado informadas por el paciente; Tipo 1
Objectives The objective was to identify candidate patient reported outcomes with potential to inform individual patient care and service development for inclusion in a digital outcome set to be collected in routine care, as part of an international project to enhance care outcomes for people with diabetes. Methods PubMed, COSMIN and COMET databases were searched. Published studies were included if they recommended patient reported outcomes that were clinically useful and/or important to people with diabetes. To aid selection decisions, recommended outcomes were considered in terms of the evidence endorsing them and their importance to people with diabetes. Results Twenty-seven studies recommending 53 diabetes specific outcomes, and patient reported outcome measures, were included. The outcomes reflected the experience of living with diabetes (e.g. psychological well-being, symptom experience, health beliefs and stigma) and behaviours (e.g. self-management). Diabetes distress and self-management behaviours were most endorsed by the evidence. Conclusions The review provides a comprehensive list of candidate outcomes endorsed by international evidence and informed by existing outcome sets, and suggestions for measures. Practice implications The review offers evidence to guide clinical application. Integrated measurement of these outcomes in care settings holds enormous potential to improve provision of care and outcomes in diabetes.
H2O has received funding from the Innovative Medicines Initiative (IMI) 2 Joint Undertaking under grant agreement No 945345-2. This Joint Undertaking receives support from the European Union's Horizon 2020 research and innovation programme, EFPIA, Trial Nation and JDRF International. The funding source was not involved in the study design; the collection, analysis, and interpretation of data; the writing of the report, or the decision to submit the article for publication. The manuscript reflects only the author's view. The IMI, the European Union, EFPIA, or any Associated Partners are not responsible for any use that may be made of the information it contains.
Article
Published version
English
Diabetis; Pacients - Participació; DISEASES::Endocrine System Diseases::Diabetes Mellitus; ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Investigative Techniques::Epidemiologic Methods::Data Collection::Surveys and Questionnaires::Health Care Surveys::Patient Reported Outcome Measures; ENFERMEDADES::enfermedades del sistema endocrino::diabetes mellitus; TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::técnicas de investigación::métodos epidemiológicos::recopilación de datos::encuestas y cuestionarios::encuestas sobre atención a la salud::medidas de resultados percibidos por los pacientes
Elsevier
Patient Education and Counseling;116
https://doi.org/10.1016/j.pec.2023.107933
Attribution 4.0 International
http://creativecommons.org/licenses/by/4.0/
Articles científics - HVH [3396]
Articles científics - VHIR [1655]
