dc.contributor
[Rubín de Célix C] Gastroenterology Department, Hospital Universitario de La Princesa, Instituto de Investigación Sanitaria Princesa, Universidad Autónoma de Madrid, Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas, Madrid, Spain. [Martín-de-Carpi J, Pujol-Muncunill G] Department of Paediatric Gastroenterology, Hepatology and Nutrition, Hospital Sant Joan de Déu, Barcelona, Spain. [María Palomino L, Velasco Rodríguez-Belvís M] Paediatric Gastroenterology and Nutrition Department, Hospital Infantil Universitario Niño Jesús, Madrid, Spain. [Martín-Masot R] Paediatric Gastroenterology and Nutrition Unit, Hospital Regional Universitario de Málaga, Biomedical Re-search Institute of Málaga, Málaga, Spain. [Monfort Miquel D] Servei de Gastroenterologia, Hospital de Terrassa, Consorci Sanitari de Terrassa, Terrassa, Spain
dc.contributor
Consorci Sanitari de Terrassa
dc.contributor.author
Rubín de Célix, Cristina
dc.contributor.author
Pujol Muncunill, Gemma
dc.contributor.author
Velasco Rodríguez-Belvís, Marta
dc.contributor.author
MARTÍN-MASOT, RAFAEL
dc.contributor.author
Monfort Miquel, David
dc.contributor.author
Martín de Carpi, Javier
dc.contributor.author
Palomino Pérez, Laura María
dc.date.accessioned
2025-10-24T08:28:21Z
dc.date.available
2025-10-24T08:28:21Z
dc.date.issued
2023-08-25T12:08:58Z
dc.date.issued
2023-08-25T12:08:58Z
dc.date.issued
2023-07-21
dc.identifier
Rubín de Célix C, Martín-de-Carpi J, Pujol-Muncunill G, María Palomino L, Velasco Rodríguez-Belvís M, Martín-Masot R, et al. Benefits of Paediatric to Adult Transition Programme in Inflammatory Bowel Disease: The BUTTERFLY Study of GETECCU and SEGHNP. J Clin Med. 2023 Jul 21;12(14):4813.
dc.identifier
https://hdl.handle.net/11351/10162
dc.identifier
10.3390/jcm12144813
dc.identifier.uri
https://hdl.handle.net/11351/10162
dc.description.abstract
Inflammatory bowel diseases; Transition to adult care; Transitional care
dc.description.abstract
Enfermedad inflamatoria intestinal; Tránsito a la atención adulta; Cuidados de transición
dc.description.abstract
Malaltia inflamatòria intestinal; Trànsit a l'atenció adulta; Cures de transició
dc.description.abstract
Background: Transition is a planned movement of paediatric patients to adult healthcare systems, and its implementation is not yet established in all inflammatory bowel disease (IBD) units. The aim of the study was to evaluate the impact of transition on IBD outcomes. (2) Methods: Multicentre, retrospective and observational study of IBD paediatric patients transferred to an adult IBD unit between 2017-2020. Two groups were compared: transition (≥1 joint visit involving the gastroenterologist, the paediatrician, a programme coordinator, the parents and the patient) and no-transition. Outcomes within one year after transfer were analysed. The main variable was poor clinical outcome (IBD flare, hospitalisation, surgery or any change in the treatment because of a flare). Predictive factors of poor clinical outcome were identified with multivariable analysis. (3) Results: A total of 278 patients from 34 Spanish hospitals were included. One hundred eighty-five patients (67%) from twenty-two hospitals (65%) performed a structured transition. Eighty-nine patients had poor clinical outcome at one year after transfer: 27% in the transition and 43% in the no-transition group (p = 0.005). One year after transfer, no-transition patients were more likely to have a flare (36% vs. 22%; p = 0.018) and reported more hospitalisations (10% vs. 3%; p = 0.025). The lack of transition, as well as parameters at transfer, including IBD activity, body mass index < 18.5 and corticosteroid treatment, were associated with poor clinical outcome. One patient in the transition group (0.4%) was lost to follow-up. (4) Conclusion: Transition care programmes improve patients' outcomes after the transfer from paediatric to adult IBD units. Active IBD at transfer impairs outcomes.
dc.description.abstract
This work was supported by a grant from the Young Group of the Spanish Gastroenterology Association (AEG).
dc.format
application/pdf
dc.relation
Journal of Clinical Medicine;12(14)
dc.relation
https://doi.org/10.3390/jcm12144813
dc.rights
Attribution 4.0 International
dc.rights
http://creativecommons.org/licenses/by/4.0/
dc.rights
info:eu-repo/semantics/openAccess
dc.subject
Intestins - Inflamació
dc.subject
DISEASES::Digestive System Diseases::Gastrointestinal Diseases::Gastroenteritis::Inflammatory Bowel Diseases
dc.subject
ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Therapeutics::Patient Care::Continuity of Patient Care::Transition to Adult Care
dc.subject
ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Therapeutics::Patient Care::Continuity of Patient Care::Transitional Care
dc.subject
ENFERMEDADES::enfermedades del sistema digestivo::enfermedades gastrointestinales::gastroenteritis::enfermedad inflamatoria intestinal
dc.subject
TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::continuidad de la atención al paciente::cuidados de transición
dc.subject
TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::continuidad de la atención al paciente::tránsito a la atención adulta
dc.title
Benefits of Paediatric to Adult Transition Programme in Inflammatory Bowel Disease: The BUTTERFLY Study of GETECCU and SEGHNP
dc.type
info:eu-repo/semantics/article
dc.type
info:eu-repo/semantics/publishedVersion
