dc.contributor |
Universitat de Barcelona |
dc.contributor.author |
Irazábal, Marcia |
dc.contributor.author |
Marsà, Ferrán |
dc.contributor.author |
García, Mercedes |
dc.contributor.author |
Gutiérrez-Recacha, Pedro |
dc.contributor.author |
Martorell, Almudena |
dc.contributor.author |
Salvador Carulla, Luis |
dc.contributor.author |
Ochoa Güerre, Susana |
dc.date |
2012-04-26T08:47:05Z |
dc.date |
2012-04-26T08:47:05Z |
dc.date |
2012 |
dc.identifier.citation |
0891-4222 |
dc.identifier.citation |
612655 |
dc.identifier.uri |
http://hdl.handle.net/2445/24525 |
dc.format |
9 p. |
dc.format |
application/pdf |
dc.language.iso |
eng |
dc.publisher |
Elsevier |
dc.relation |
Versió preprint del document publicat a: http://dx.doi.org/10.1016/j.ridd.2011.12.002 |
dc.relation |
Research in Developmental Disabilities, 2012, vol. 33, núm. 3, p. 796-803 |
dc.relation |
http://dx.doi.org/10.1016/j.ridd.2011.12.002 |
dc.rights |
(c) Elsevier, 2012 |
dc.rights |
info:eu-repo/semantics/openAccess |
dc.subject |
Discapacitats mentals |
dc.subject |
Psicopatologia |
dc.subject |
Cuidadors |
dc.subject |
People with mental disabilities |
dc.subject |
Pathological psychology |
dc.subject |
Caregivers |
dc.title |
Family burden related to clinical and functional variables of people with intellectual disability with and without a mental disorder |
dc.type |
info:eu-repo/semantics/article |
dc.type |
info:eu-repo/semantics/submittedVersion |
dc.description.abstract |
Few studies have been found that to assess the factors that explain higher levels of familyburden in adults with intellectualdisability (ID) and intellectualdisability and mental disorders (ID-MD). The aims of this study were to assess familyburden in people with ID and ID-MD and to determine which sociodemographic, clinical and functionaldisabilityvariables account for familyburden. The sample is composed of pairs of 203 participants with disability and their caregivers, of which 33.5% are caregivers of people with ID and 66.5% of ID-MD. Assessments were performed using scales of clinical and functionaldisability as the following instruments: Weschler Adult Intelligence Scale-III (WAIS-III), Inventory for Client and Agency Planning (ICAP), Psychiatric Assessment Schedule for Adults with Development Disability (PAS-ADD checklist), Disability Assessment Schedule of the World Health Organization (WHO-DAS-II) and familyburden (Subjective and Objective FamilyBurden Inventory - SOFBI/ECFOS-II). People with ID-MD presented higher levels of functionaldisability than those with ID only. Higher levels of familyburden were related to higher functionaldisability in all the areas (p < 0.006-0.001), lower intelligence quotient (p < 0.001), diagnosis of ID-MD (p < 0.001) and presence of organic, affective, psychotic and behavioral disorders (p < 0.001). Stepwise multiple regression showed that behavioral problems, affective and psychotic disorder, disability in participation in society, disability in personal care and presence of ID-MD explained more than 61% of the variance in familyburden. An integrated approach using effective multidimensional interventions is essential for both people with ID and ID-MD and their caregivers in order to reduce familyburden. |