2026-04-20T03:09:30Zhttps://recercat.cat/oai/request
oai:recercat.cat:2445/2227812025-11-19T22:49:20Zcom_2072_1057col_2072_478798col_2072_478916col_2072_478917
RECERCAT author Rubio, Raül author Palacios, Beatriz author Varela, Luis author Gutiérrez Ibañez, Martín author Camargo Correa, Selene author Calvo Barriuso, Elena author José Bazán, Nuria author Yun Viladomat, Sergi author Soria Gómez, María Teresa author Montero Hernández, Esther author Hidalgo, Encarna author Enjuanes, Cristina author Rueda, Yolanda author San Saturnino, Maite author Garcimartín Cerezo, Paloma author López Ibor, Jorge V. author Segovia Cubero, Javier author Comín Colet, Josep 2025-11-19T22:49:20Z 2025-11-19T22:49:20Z 2025-08-27T06:57:50Z2025-08-27T06:57:50Z2025-07-032025-08-19T08:44:49Z http://hdl.handle.net/2445/222781 Background/Objectives: Evidence of patient experiences with heart failure with preserved ejection fraction (HFpEF) and disease impact on quality of life (QoL) is scarce. This study explored perceived impacts on QoL and healthcare experiences of HFpEF patients and their caregivers. Methods: This was a mixed-methods study with HFpEF patients, >= 40 years, New York Heart Association functional classes I-IV in Spain. Qualitative data were collected through semi-structured interviews with patients (n = 19) and caregivers (n = 17). The EuroQoL 5D-5L, Patient Global Impression of Severity, and Kansas City Cardiomyopathy Questionnaire were used to collect QoL measures. Results: The themes were as follows. (1) Impact of HFpEF on QoL; (2) new roles of informal caregiving; and (3) the increasing value of multidisciplinary care. Qualitative data were supported by a trend of worsening QoL on quantitative measures as HF progressed, despite quantitative measures not fully capturing the burden. Qualitative data further captured discrepancies of QoL perceptions. Conclusions: The impact of HFpEF on patients and their caregivers was similar to the HFrEF population's. Insights from discrepancies between PROMs data and interviews could help with tailoring QoL questionnaires to capture the broader impact of HFpEF, identify unmet needs, and customize care. cc-by (c) Rubio, Raül et al., 2025 http://creativecommons.org/licenses/by/3.0/es/ info:eu-repo/semantics/openAccess Insuficiència cardíaca Qualitat de vida Satisfacció dels pacients Cuidadors Heart failure Quality of life Patient satisfaction Caregivers Quality of life and experience of patients with heart failure with preserved ejection fraction and their caregivers info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion