2026-04-17T14:07:37Zhttps://recercat.cat/oai/requestoai:recercat.cat:20.500.12328/25352025-05-16T13:00:21Zcom_2072_67741col_2072_484352
RECERCAT
author
Herranz-Rubia, Nuria
author
Violant, Veronica
author
Balaguer Santamaría, Albert
author
Noreña-Peña, Ana
2025-05-16T13:00:21Z
2025-05-16T13:00:21Z
2020-05-07
Herranz-Rubia, Nuria; Violant, Veronica; Balaguer Santamaría, Albert [et al.]. Applying qualitative research to develop a guide for parents of newborns with hypoxic-ischemic encephalopathy. International Journal of Qualitative Methods, 2020, 19, p. 1-12. Disponible en: <https://journals.sagepub.com/doi/10.1177/1609406920923426>. Fecha de acceso: 12 may. 2021. DOI: 10.1177/1609406920923426
1609-4069
http://hdl.handle.net/20.500.12328/2535
https://dx.doi.org/10.1177/1609406920923426
Moderate-to-severe hypoxic-ischemic encephalopathy (HIE) is a significant cause of neonatal mortality and permanent disability in surviving newborns. Therapeutic hypothermia (TH) is the only effective intervention to reduce these outcomes. Being a parent of these babies is a traumatic and strenuous event. To address these difficulties, parents need information and support. The aim of this article is to describe a qualitative methodological process followed to develop a guide for parents of a newborn with HIE receiving TH as an addendum to clinical practice guidelines. The guide based on the experience of parents of newborns with HIE is presented as 16 meaningful questions and a glossary. It provides information to parents about HIE, treatment and care, future outcomes, and coping strategies. The final version, in Spanish and English, has a didactic format with simple wording, parents’ verbatim queries, and illustrations made expressly for the guide. Furthermore, we think showing the methodological process we followed to develop the guide, detailing the difficulties that arose in doing so, and making the reflexivity of the researchers explicit may provide support for other teams undertaking similar projects. Likewise, this article illustrates in a practical way how the perspective of family can be incorporated into clinical practice guidelines.
eng
Creative Commons Non Commercial CC BY-NC: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission
provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
Pediatria
Infants nadons
Hipotèrmia
Neurologia pediàtrica
Infants -- Mortalitat
Pediatría
Lactantes
Hipotermia
Neurología pediátrica
Niños -- Mortalidad
Pediatrics
Babies
Hypothermia
Pediatric neurology
Children -- Mortality
Applying qualitative research to develop a guide for parents of newborns with hypoxic-ischemic encephalopathy
info:eu-repo/semantics/article