2026-04-17T06:55:35Zhttps://recercat.cat/oai/request

oai:recercat.cat:20.500.12328/25352025-05-16T13:00:21Zcom_2072_67741col_2072_484352

00925njm 22002777a 4500 dc Herranz-Rubia, Nuria author Violant, Veronica author Balaguer Santamaría, Albert author Noreña-Peña, Ana author 2020-05-07 Moderate-to-severe hypoxic-ischemic encephalopathy (HIE) is a significant cause of neonatal mortality and permanent disability in surviving newborns. Therapeutic hypothermia (TH) is the only effective intervention to reduce these outcomes. Being a parent of these babies is a traumatic and strenuous event. To address these difficulties, parents need information and support. The aim of this article is to describe a qualitative methodological process followed to develop a guide for parents of a newborn with HIE receiving TH as an addendum to clinical practice guidelines. The guide based on the experience of parents of newborns with HIE is presented as 16 meaningful questions and a glossary. It provides information to parents about HIE, treatment and care, future outcomes, and coping strategies. The final version, in Spanish and English, has a didactic format with simple wording, parents’ verbatim queries, and illustrations made expressly for the guide. Furthermore, we think showing the methodological process we followed to develop the guide, detailing the difficulties that arose in doing so, and making the reflexivity of the researchers explicit may provide support for other teams undertaking similar projects. Likewise, this article illustrates in a practical way how the perspective of family can be incorporated into clinical practice guidelines. Herranz-Rubia, Nuria; Violant, Veronica; Balaguer Santamaría, Albert [et al.]. Applying qualitative research to develop a guide for parents of newborns with hypoxic-ischemic encephalopathy. International Journal of Qualitative Methods, 2020, 19, p. 1-12. Disponible en: <https://journals.sagepub.com/doi/10.1177/1609406920923426>. Fecha de acceso: 12 may. 2021. DOI: 10.1177/1609406920923426 1609-4069 http://hdl.handle.net/20.500.12328/2535 https://dx.doi.org/10.1177/1609406920923426 Pediatria Infants nadons Hipotèrmia Neurologia pediàtrica Infants -- Mortalitat Pediatría Lactantes Hipotermia Neurología pediátrica Niños -- Mortalidad Pediatrics Babies Hypothermia Pediatric neurology Children -- Mortality Applying qualitative research to develop a guide for parents of newborns with hypoxic-ischemic encephalopathy