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oai:recercat.cat:11351/99632025-10-24T10:26:46Zcom_2072_378070com_2072_378040col_2072_378092

Communication transforms the impact of the COVID-19 pandemic on children with cancer and their families Ferrara, Gia Aguina, Molly Mirochnick, Emily Wiphatphumiprates, Parima Moreira, Daniel Sniderman, Elizabeth VELASCO, PABLO Institut Català de la Salut [Ferrara G, Moreira DC] St. Jude Children's Research Hospital, Memphis, Tennessee, USA. [Aguina M] Princeton University, Princeton, New Jersey, USA. [Mirochnick E] The Chicago Medical School at Rosalind Franklin University of Medicine and Science, North Chicago, Illinois, USA. [Wiphatphumiprates P] Rhodes College, Memphis, Tennessee, USA. [Sniderman E] Northern Alberta Children's Cancer Program, Stollery Children's Hospital, Edmonton, Alberta, Canada. [Velasco P] Servei d'Hematologia i Oncologia Pediàtriques, Vall d'Hebron Hospital Universitari, Barcelona, Spain Vall d'Hebron Barcelona Hospital Campus Càncer - Tractament Comunicació Infants COVID-19 (Malaltia) PSYCHIATRY AND PSYCHOLOGY::Behavior and Behavior Mechanisms::Behavior::Communication DISEASES::Virus Diseases::RNA Virus Infections::Nidovirales Infections::Coronaviridae Infections::Coronavirus Infections DISEASES::Neoplasms NAMED GROUPS::Persons::Age Groups::Child PSIQUIATRÍA Y PSICOLOGÍA::conducta y mecanismos de la conducta::conducta::comunicación ENFERMEDADES::virosis::infecciones por virus ARN::infecciones por Nidovirales::infecciones por Coronaviridae::infecciones por Coronavirus ENFERMEDADES::neoplasias DENOMINACIONES DE GRUPOS::personas::Grupos de Edad::niño Pediatric cancer; Psychosocial studies; Quality of life Càncer pediàtric; Estudis psicosocials; Qualitat de vida Cáncer pediátrico; Estudios psicosociales; Calidad de vida Background The COVID-19 pandemic altered healthcare systems globally, causing delays in care delivery and increased anxiety among patients and families. This study examined how hospital stakeholders and clinicians perceived the global impact of the COVID-19 pandemic on children with cancer and their families. Methods This secondary analysis examined data from a qualitative study consisting of 19 focus groups conducted in 8 languages throughout 16 countries. A codebook was developed with novel codes derived inductively from transcript review. In-depth analysis focused on the impact of the COVID-19 pandemic on children with cancer and their families. Results Eight themes describing the impact of the pandemic on patients and their families were identified and classified into three domains: contributing factors (COVID-19 Policies, Cancer Treatment Modifications, COVID-19 Symptoms, Beliefs), patient-related impacts (Quality of Care, Psychosocial impacts, Treatment Reluctance), and the central transformer (Communication). Participants described the ability of communication to transform the effect of contributing factors on patient-related impacts. The valence of impacts depended on the quality and quantity of communication among clinicians and between clinicians and patients and families. Conclusions Communication served as the central factor impacting whether the COVID-19 pandemic positively or negatively affected children with cancer and families. These findings emphasize the key role communication plays in delivering patient-centered care and can guide future development of communication-centered interventions globally. Funding support to St. Jude Children's Research Hospital provided by the Cancer Center Support (CORE) grant (CA21765) and the American Lebanese-Syrian Associated Charities (ALSAC). 2023-07-05T07:41:33Z 2023-07-05T07:41:33Z 2023-06 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Ferrara G, Aguina M, Mirochnick E, Wiphatphumiprates P, Moreira DC, Sniderman E, et al. Communication transforms the impact of the COVID-19 pandemic on children with cancer and their families. Cancer Med. 2023 Jun;12(11):12813–26. 2045-7634 https://hdl.handle.net/11351/9963 10.1002/cam4.5950 37081718 000975504400001 http://hdl.handle.net/11351/9963 eng Cancer Medicine;12(11) https://doi.org/10.1002/cam4.5950 Attribution 4.0 International http://creativecommons.org/licenses/by/4.0/ info:eu-repo/semantics/openAccess application/pdf application/pdf Wiley Scientia