2026-04-13T03:13:01Zhttps://recercat.cat/oai/requestoai:recercat.cat:11351/64022025-10-24T10:58:21Zcom_2072_378068com_2072_378040col_2072_378090
RECERCAT
author
González del Rio, Marina
author
Bertran Noguer, Carme
author
Zabaleta-del-Olmo, Edurne
author
Ramió-Torrentà, Lluís
2025-10-24T10:58:21Z
2025-10-24T10:58:21Z
2021-10-18T07:49:19Z2021-10-18T07:49:19Z2021-10-05
http://hdl.handle.net/11351/6402
Adult neurology; Multiple sclerosis; Quality in health careNeurología de adultos; Esclerosis múltiple; Calidad en el cuidado de la saludNeurologia de l’adult; Esclerosi múltiple; Qualitat en l'atenció sanitàriaIntroduction: Disease-related knowledge is a key component of shared decision making and a relevant outcome to measure the effectiveness of information provision interventions. However, no systematic psychometric reviews have been found that assess the measurement instruments aimed at evaluating the disease-related knowledge of people affected by multiple sclerosis. This review aims to systematically assess the quality of the measurement properties of all available disease-related knowledge measurement instruments of people affected by multiple sclerosis.
Methods and analysis: A systematic psychometric review will be carried out in accordance with the guidelines proposed by the international 'COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN)' initiative. Studies that meet the following criteria will be selected: (1) those whose aim is to measure disease-related knowledge, (2) those whose study populations are affected by multiple sclerosis and (3) those whose aims are to develop measurement instruments or evaluate one or more of their measurement properties. The information sources will be MEDLINE (via PubMed), CINAHL, PsycINFO and OpenGrey. The methodological quality will be assessed using the 'COSMIN Risk of Bias' checklist. Available evidence will be synthesised and graded using a modified Grading of Recommendations Assessment, Development and Evaluation approach.
Ethics and dissemination: As this is a systematic review, no ethics approval is needed. Study findings will be shared with multiple sclerosis patient support groups and in reports to funders. The results will be submitted to a peer-reviewed journal and will be presented at national and international conferences.
Attribution-NonCommercial-NoDerivatives 4.0 International http://creativecommons.org/licenses/by-nc-nd/4.0/ info:eu-repo/semantics/openAccess
Esclerosi múltiple
Assistència sanitària - Qualitat
DISEASES::Nervous System Diseases::Autoimmune Diseases of the Nervous System::Demyelinating Autoimmune Diseases, CNS::Multiple Sclerosis
HEALTH SURVEILLANCE::Health Surveillance of Health Services::Delivery of Health Care::Quality of Health Care
ENFERMEDADES::enfermedades del sistema nervioso::enfermedades autoinmunitarias del sistema nervioso::enfermedades autoinmunes desmielinizantes del SNC::esclerosis múltiple
VIGILANCIA SANITARIA::vigilancia sanitaria de los servicios de salud::prestación sanitaria::calidad de la atención sanitaria
Disease-related knowledge measurement instruments of people affected by multiple sclerosis: protocol for a systematic psychometric review
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion