2026-04-17T17:51:11Zhttps://recercat.cat/oai/request

oai:recercat.cat:11351/138122025-10-24T10:40:02Zcom_2072_378070com_2072_378040col_2072_378092

Experience of Families During Admission of Their Minors to a Paediatric Intensive Care Unit: A Phenomenological Study RUBIO GARRIDO, PATRICIA Bazo-Hernández, Leticia Enrich-Font, Anna Jiménez-Herrera, Maria F. Família - Aspectes psicològics Adaptació (Psicologia) Pediatria intensiva Hospitals - Ingressos i altes HEALTH CARE::Health Care Facilities, Manpower, and Services::Health Facilities::Hospital Units::Intensive Care Units::Intensive Care Units, Pediatric PSYCHIATRY AND PSYCHOLOGY::Behavior and Behavior Mechanisms::Adaptation, Psychological PUBLIC HEALTH::Population Studies in Public Health::Family ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Therapeutics::Patient Care::Hospitalization::Patient Admission ATENCIÓN DE SALUD::instalaciones, servicios y personal de asistencia sanitaria::centros sanitarios::unidades hospitalarias::unidades de cuidados intensivos::unidades de cuidados intensivos pediátricos PSIQUIATRÍA Y PSICOLOGÍA::conducta y mecanismos de la conducta::adaptación psicológica SALUD PÚBLICA::Estudios Poblacionales en Salud Pública::familia TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::terapéutica::asistencia al paciente::hospitalización::admisión de pacientes Family‐centred care; Hospitalised; Intensive care units paediatric Atención centrada en la familia; Hospitalizado; Unidades de cuidados intensivos pediátricos Atenció centrada en la família; Hospitalitzat; Unitats de cures intensives pediàtriques Background Being admitted to a paediatric intensive care unit is a stressful situation for the minor and their family, causing emotional alterations that generate changes in psychological, physical and social aspects, as well as on how to take care of the minor. Aim The objective of this study was to explore the coping strategies experienced by families who have a minor admitted to the paediatric intensive care unit. Methods Phenomenological qualitative research study. A sample of 12 participants was obtained from families who had a prolonged admission to the paediatric intensive care unit of a minimum duration of 3 months and who were not in an end-of-life situation. The data analysis was carried out by deepening the study theme during the data collection of the three group interviews conducted. Ethics Statement This study is part of a predoctoral research project approved by the Ethics Committee of the Vall d'Hebrón University Hospital in Barcelona (approval code: PRAMI-273/2015). Results Two main categories were identified that emerged from the families' perceptions related admission of their minors to the paediatric intensive care unit and their subsequent adaptation to the new situation: (1) Family self-perception: the families' own perceptions of different feelings and emotions experienced during admission and their interpretations are collected. (2) Role of the caregiver: understood as the families' perceptions of the capacity and willingness to face the new situation in the child's health-disease process; and 10 subcategories: training, comfort, confidence, fear, anxiety, impotence, loneliness, will, adaptability and reference family group. Conclusions The findings show the need to carry out an integrative approach to families which coexist in a paediatric intensive care unit; through the training of these families to be able to cope with health changes. 2025-10-24T10:40:02Z 2025-10-24T10:40:02Z 2025-10-24T10:40:02Z 2025-10-09T07:56:33Z 2025-10-09T07:56:33Z 2025-06 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion http://hdl.handle.net/11351/13812 Scandinavian Journal of Caring Sciences;39(2) https://doi.org/10.1111/scs.70055 Attribution 4.0 International http://creativecommons.org/licenses/by/4.0/ info:eu-repo/semantics/openAccess Wiley Scientia