2026-04-19T22:40:47Zhttps://recercat.cat/oai/request

oai:recercat.cat:11351/136872025-10-24T10:59:43Zcom_2072_451665com_2072_378040col_2072_451666

A Pragmatic Tele-Nursing Program Improves Satisfaction of Patients with Pulmonary Fibrosis and Their Caregivers-A Pilot Study Baiges, Mireia Iglesias, David Persentili, Sara Jiménez, Marta Ortega, Pilar Bordas-Martinez, Jaume [Baiges M] Pulmonology Department, Hospital General de Granollers, Granollers, Spain. Nursing Department, Hospital General de Granollers, Granollers, Spain. [Iglesias D] Nursing Department, Hospital General de Granollers, Granollers, Spain. Universidad de Extremadura (UEX), Badajoz, Spain. [Persentili S] Psychology Department, Hospital General de Granollers, Granollers, Spain. [Jiménez M] Patient Experience Department, Hospital General de Granollers, Granollers, Spain. [Ortega P] Pulmonology Department, Hospital General de Granollers, Granollers, Spain. [Bordas-Martinez J] Pulmonology Department, Hospital General de Granollers, Granollers, Spain. Pulmonology Department, Universidad Internacional de Cataluña (UIC), Barcelona, Spain Hospital General de Granollers Telemedicina Fibrosi pulmonar Infermeria DISEASES::Respiratory Tract Diseases::Lung Diseases::Pulmonary Fibrosis HEALTH CARE::Health Services Administration::Organization and Administration::Professional Practice::Nursing::Telenursing ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Investigative Techniques::Epidemiologic Methods::Epidemiologic Study Characteristics::Epidemiologic Studies::Cohort Studies::Follow-Up Studies ENFERMEDADES::enfermedades respiratorias::enfermedades pulmonares::fibrosis pulmonar ATENCIÓN DE SALUD::administración de los servicios de salud::organización y administración::práctica profesional::enfermería::teleenfermería TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::técnicas de investigación::métodos epidemiológicos::características de los estudios epidemiológicos::estudios epidemiológicos::estudios de cohortes::estudios de seguimiento Tele-nursing; Pulmonary fibrosis; Patient-reported experience measures Teleinfermeria; Fibrosi pulmonar; Mesures de l'experiència reportada pel pacient Teleenfermería; Fibrosis pulmonar; Medidas de experiencia informada por el paciente Background and Objectives: Specialized nurses play an essential role in managing pulmonary fibrosis. While tele-nursing has the potential to optimize disease management, current evidence regarding its impact remains limited. This study aimed to evaluate a tele-nursing intervention that provided unscheduled access to a specialized nurse via phone or email for both patients and caregivers. Materials and Methods: This was a prospective, single-center, open-label, and pre-post pilot study. Participants and their caregivers were provided with direct access to a specialized nurse, by phone and email, for unscheduled consultations. Patient-reported experience measures (PREMs) and patient-reported outcome measures (PROMs) were collected at baseline and after three months of tele-nursing access. PREMs were assessed using a 10-point Likert scale questionnaire, and PROMs were evaluated using the King's Brief Interstitial Lung Disease (K-BILD) and the Living with Pulmonary Fibrosis (L-PF) questionnaires. Results: A total of 47 patients with pulmonary fibrosis receiving antifibrotic drugs were enrolled. At three months, 44 patients and 34 caregivers completed the questionnaires. Four patients did not complete the study due to death, lung transplantation, or transition to end-of-life care. No significant changes were observed in PROMs. However, PREMs showed significant improvements, with most scores exceeding 9/10. Patient satisfaction increased by 28% (p < 0.001), and caregiver satisfaction by 30% (p < 0.001). Caregivers of patients who did not complete the study also reported high satisfaction, comparable to that of other caregivers. Conclusions: A pragmatic and affordable tele-nursing program, based on direct phone and email consultations, may enhance patient and caregiver satisfaction in the management of pulmonary fibrosis. 2025-09-19T07:28:06Z 2025-09-19T07:28:06Z 2025-07-30 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Baiges M, Iglesias D, Persentili S, Jiménez M, Ortega P, Bordas-Martinez J. A Pragmatic Tele-Nursing Program Improves Satisfaction of Patients with Pulmonary Fibrosis and Their Caregivers-A Pilot Study. Medicina (Kaunas). 2025 Jul 30;61(8):1385. 1648-9144 http://hdl.handle.net/11351/13687 10.3390/medicina61081385 40870428 http://hdl.handle.net/11351/13687 eng Medicina (Kaunas, Lithuania);61(8) https://www.doi.org/10.3390/medicina61081385 Attribution-NonCommercial 4.0 International https://creativecommons.org/licenses/by/4.0/ info:eu-repo/semantics/openAccess application/pdf MDPI Scientia