2026-04-13T02:58:43Zhttps://recercat.cat/oai/request

oai:recercat.cat:11351/131442025-10-24T10:16:50Zcom_2072_378070com_2072_378040col_2072_378092

00925njm 22002777a 4500 dc Zhang, Yiling author Hensey, Owen author Grossberg, David author Tedeschi, Sara author Abhishek, Abhishek author Cai, Ken author Coronel, Luis author 2025-05-26T13:03:58Z 2025-05-26T13:03:58Z 2025-06 Calcium pyrophosphate deposition disease; Core domain set; Delphi Enfermedad por depósito de pirofosfato de calcio; Conjunto de dominios centrales; Delphi Malaltia per dipòsit de pirofosfat de calci; Conjunt de dominis centrals; Delphi Objective To agree on important domains for the Outcome Measures in Rheumatology (OMERACT) core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition (CPPD) disease. Methods Patient research partners (PRPs) and other participants (mainly clinicians and researchers) contributed to three rounds of a consensus survey using Delphi methodology. Consensus was defined if ≥70% of both patients and other participants scored the domain as ‘critically important domain to include’. In a subsequent ranking exercise, all participants were asked to select and rank up to 10 of the domains reaching consensus. Results Fifteen domains reached consensus as critically important. Within the Pathophysiological Manifestations area, these were joint pain, joint tenderness, joint swelling, acute CPP crystal arthritis flare, joint damage on imaging tests, joint calcification on imaging tests, and crystals in joint fluid. Within the Life Impact area, these were overall function, ability to complete daily tasks, ability to work, health related quality of life, patient global assessment response to treatment, patient global assessment of disease activity, physician global assessment of disease activity, and patient satisfaction with treatment. No domains within the Societal/Resource Use area reached consensus as critically important. In the ranking exercise, joint pain, joint tenderness, joint swelling, acute CPP crystal arthritis flare and overall function were most highly ranked. Conclusion This work has identified potential domains for the OMERACT core domain set for chronic and/or recurrent manifestations of CPPD disease. There was strong support for joint pain, joint tenderness, joint swelling, acute CPP crystal arthritis flare, overall function, and global assessments of disease activity as core domains. http://hdl.handle.net/11351/13144 Decisió, Presa de Dolor crònic Condrocalcinosi Mètode Delphi Avaluació de resultats (Assistència sanitària) DISEASES::Musculoskeletal Diseases::Joint Diseases::Arthritis::Chondrocalcinosis DISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Chronic Disease PSYCHIATRY AND PSYCHOLOGY::Behavior and Behavior Mechanisms::Psychology, Social::Group Processes::Consensus HEALTH CARE::Health Care Quality, Access, and Evaluation::Quality of Health Care::Health Care Evaluation Mechanisms::Outcome and Process Assessment (Health Care)::Outcome Assessment (Health Care) INFORMATION SCIENCE::Information Science::Systems Analysis::Delphi Technique ENFERMEDADES::enfermedades musculoesqueléticas::artropatías::artritis::condrocalcinosis ENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::atributos de la enfermedad::enfermedad crónica PSIQUIATRÍA Y PSICOLOGÍA::conducta y mecanismos de la conducta::psicología social::procesos de grupo::consenso CIENCIA DE LA INFORMACIÓN::Ciencias de la información::análisis de sistemas::técnica Delfos ATENCIÓN DE SALUD::calidad, acceso y evaluación de la atención sanitaria::calidad de la atención sanitaria::mecanismos de evaluación de la atención sanitaria::evaluación de resultados y procesos (atención a la salud)::evaluación del desenlace (asistencia sanitaria) Core domain set for chronic and/or recurrent manifestations of calcium pyrophosphate deposition disease: OMERACT delphi survey to establish consensus