Title:
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Spanish Family Quality of Life Scales: Under and over 18 year old
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Author:
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Giné Giné, Climent, 1948-; Vilaseca Momplet, Rosa María; Gràcia Garcia, Marta; Mora, Joaquín; Orcasitas, José Ramón; Simón, Cecilia; Torrecillas, Ana María; Salvador Beltrán, Francesc; Dalmau Montalà, Mariona; Pro, Maria Teresa; Balcells-Balcells, Anna; Mas Mestre, Joana Maria; Adam-Alcocer, Ana Luisa; Simó-Pinatella, David
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Other authors:
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Universitat de Barcelona |
Abstract:
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Background Researchers, professionals, and families have shown increasing concern with the family quality of life (FQoL) of people with intellectual disability (ID) and their families. The goals of this research were (a) to explore how Spanish families understand FQoL by developing 2 different measurement tools for families with a member with ID under and over 18 years old, and (b) to provide 2 diagnostic instruments that will be useful for designing action plans. Method The study comprised 4 stages: (a) focus groups, (b) expert assessment, (c) pilot study, and (d) normalisation and standardisation. The data were collected in 5 regions in Spain, and 1,205 families with a member with ID took part in the normalisation and standardisation of the scales. Results Both FQoL scales were consistent and have valid psychometric characteristics. Conclusions The scales have a diagnostic purpose for use in designing action plans aimed at producing significant changes in families'lives. |
Subject(s):
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-Família -Qualitat de vida -Espanya -Family -Quality of life -Spain |
Rights:
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(c) Australasian Society for the Study of Intellectual Disability, 2013
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Document type:
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Article Article - Accepted version |
Published by:
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Informa Healthcare
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